A series of charity walks, and rolls (for wheelchair users), along the route of a 50,000 km train journey will be organised.
The trains that are included in this journey, are some of the highest, longest and most iconic trains on Earth; passing through some of the most beautiful and wild landscapes on the planet.
The entire, 50,000 km, journey will restart in 2016 - to raise vital funds for Ataxia UK and as a vehicle to raise global awareness of ataxia and to serve as a vehicle to unite ataxia sufferers, supporters and charities worldwide.
How you can be part of this journey
Organizer: "The journey will start on the 23rd of January next year, with a Walk'n'Roll through Hyde Park in London (my 50th birthday & I can't think of a better way of marking the occasion). Everyone, whether a London resident or visitor, ataxia sufferer or not, is invited to join me for a gentle stroll through London's finest park."
And as a way of thanking "Friends" for their vital support, their websites, Twitter and Facebook pages are listed. Additionally, their Twitter accounts are listed on a dedicated Twitter list at: Friends of 100 Trains.
A bit of history
On reaching Novosibirsk, it became obvious that a previously minor "balance" condition was progressively worsening, and that seeking medical attention might be a wise idea.
So the journey was very reluctantly abandoned, and the initiator returned to Scotland for what would turn out to be 2 years of medical tests.
"On returning to Scotland, it took a never-ending stream of doctors and neurologists almost 2 years to identify the cause of my deteriorating health. And it wasn't good news: I am suffering from a form of ataxia. Late onset Spinocerebellar Ataxia in my case."
"Ataxia? Never heard of it? Neither had I. And we're not alone. Around 91% of the UK population have never heard of it either (one of my aims for this journey, is to put a huge dent in that 91% figure!)."
"So now I will attempt the entire 50,000 km journey again. Only this time, the journey will be done in a number of smaller stages (due to the nature of my ataxia). Plus, I'll be taking part in fundraising walks in many of the cities I pass through - raising vital research funds for ataxia research, and uniting ataxia sufferers and supporters worldwide. "
"Ataxia? Never heard of it? Neither had I. And we're not alone. Around 91% of the UK population have never heard of it either (one of my aims for this journey, is to put a huge dent in that 91% figure!)."
"So now I will attempt the entire 50,000 km journey again. Only this time, the journey will be done in a number of smaller stages (due to the nature of my ataxia). Plus, I'll be taking part in fundraising walks in many of the cities I pass through - raising vital research funds for ataxia research, and uniting ataxia sufferers and supporters worldwide. "
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